Let me introduce you to mr lupus
Living with lupus is more than just about symptoms, medication, & treatment. Laughter and a positive mental attitude are essential nutrients in the daily diet and there is always a story to tell. In this space I want to share my story with you and hopefully together we can discover more coping mechanisms and strategies and ways in which we can laugh longer and more often. In my early diagnosis of lupus, I was looking for a way to navigate my way through the challenges that lupus was posing and I discovered that being able to laugh loudly and often was really a help in managing life day to day; a fact Norman Cousins who is known as the man who laughed himself to wellness, proved. I was angry and I needed someone to blame and changing lupus into a character became a way to not only acknowledge what was happening to me but also to find a way to deal with it. I guess men were an obvious target (for reasons I will not go into here) and so my challenge became a battle and war with mr lupus...
Read More Posts From This CategoryMy journey with mr lupus
It’s World lupus Day!
Today the whole world are joining together so we can make a ripple across the globe....
Another mr lupus production!
I’m sure this whole lymph node thing is a mr lupus production. But sitting around...
And no George Clooney in sight!
How is it that after watching so many hospital dramas I have not been able to find...
Have you lost weight recently?
I was really excited the night I went to sleep and woke up a size thinner okay maybe...
A stay in hospital has its good points!
As a single woman living alone, there are very few browny points when mr lupus comes...
Surely I must be up or some kind of award!
Before the end of February I had been to casualty three times, visited my GP twice,...
I understand the power of a shower!
The white of the sides were dazzling and the water that moved between them was at...
I’ve got lupus!
Okay that may not be a startling revelation as I have now been diagnosed with lupus...
Read More Posts From This CategoryUseful Resources
Pamper yourself
Over recent months I have used this space to talk about my feelings and the things that mr lupus has thrown my way. I have learnt alot about myself and life in general in the process and have discovered that there are ways to manage and deal with all encounters with mr lupus so I have decided rather than just use this space as a place to talk about the condition to also use it as a place to identify, create and share resources to help make this journey through life a more enjoyable one. Pampering is, I believe, an important part of the process and I intend to identify, create and share useful resources to help make the journey a more manageable and enjoyable one. If you have come across tools or resources that have made your life with lupus easier or know of things that can help please share that with me so that I can share it with others. Sometimes mr lupus can make me feel quite isolated. Please make my day and buy me a drink. Thank you. Carole Read More →
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