The journey with lupus is littered with lots of hills, valleys, craters and black holes and sometimes it feels as though you are the only one experiencing these symptoms or circumstances. Whilst lupus affects people in different ways you will find that we are probably more alike than we are different in the way in which these events affect us.
Finding ways to live and cope with lupus is the daily pursuit of anyone living with or under the umbrella of this condition. Our coping strategies are often as individual as our personalities but sometimes the sharing of our stories and our coping strategies can help someone else get through a challenge or a difficult moment.
Talking or writing about your story is a therapeutic way of dealing with your lupus challenges and in the process of sharing you are also helping someone else. It is so powerful to feel that you are not alone in your pain and suffering and that there really is hope.
Tell us what is happening to you, how you have coped with it and anything you have learnt from the process or simply rant about the injustice of it all. Whichever route you take we are happy to hear from you. Contact us using the form below and we will contact you. Don’t worry if writing is not your thing we can help you to do that or to record you speaking if that is something you prefer.
Help us to help each other. Simply fill in your details in the form below and get ready to share your story.
We look forward to hearing from you.
Chief Empowerment Officer
Laughing with mr lupus
The mathematical question is just to let us know that you are a real person.