I don’t like change!

Musings from the lupus fog

It’s official, I don’t like change. I thought I did, I thought I could cope well with it. I even used to quip that change is easy look how we all managed to make it today without bemoaning the loss of yesterday. Crazy and big headed, I know but the moment a ‘new’ carer knocked [...]

I am not superwoman

lupus fog on a Monday

I stepped inbetween a fight that was about to kick off between two adults at a 9-year-old party completely forgetting mr lupus, who incidentally reprimanded. Strongly for the next three days. I jumped in as a superhero ready to save the day and the world from themselves. Lesson’s learnt - Apart from the fact that I [...]

Just a tin of beans

Open tin of baked beans

All that was standing between me and starvation (okay that might be a bit of an exaggeration but it felt that way) was a can of ring pull baked beans. (Note to self go shopping and make sure the cupboards are full.) Do you know how hard it is to open a tin of baked [...]

lupus fact #9

“Kidney disease occurs in 50-75% of children with SLE.  The prevalence seems to be slightly higher than that seen in adults.” I have no reference point to this but as the lupus Foundation of America said it I just wanted to share it with you.  

lupus fact #10

“Only ten percent of people with lupus will have a close relative who already has lupus or may develop lupus. Some people with lupus also will have a relative who has lupus or another autoimmune disease.” lupus Foundation of America I have no reference point to this but I thought I’d mention it anyway!

lupus fact #8

“Lupus is an autoimmune disease that can damage any organ in the body and can cause life-threatening consequences” I can honestly say that there is not an orifice or organ of my body that has not been involved in my lupus journey but I also know that the prognosis does not have to be one [...]

Video Game Can Reduce Fatigue in African-American Women With Lupus


Advances in lupus research spotlight on treatment


lupus facts #7

children get lupus too!

5 percent of all cases of lupus are in children. About 20% of systemic lupus patients are diagnosed before 20 years of age. In the majority of these individuals, the illness begins around the time of puberty, or 12 to 14 years of age. lupus is that it does not discriminate, there are even stories of children being born [...]

Here’s to freedom!

Freedom from lupus yes please

“The moment you can visualize being free from the things that hold you back, you have indeed begun to set yourself free.”—Unknown I just love this picture, it depicts exactly how it feels sometimes to have movement and life restricted but just like in the picture all things are possible