It’s not nice when anyone is diagnosed with any lupus related condition. I think I would like it to be an exclusive club which doesn’t allow anyone in and actively seeks to get people out of the club but that’s a fantasy so when someone high profile speaks out about their challenges it can only [...]
Reprinted from an article printed by The Lupus Foundation of America Authors: Ruperto N, Hanrahan L, Alarcón G, Belmont H, Brey R, Brunetta P, Buyon J, Costner M, Cronin M, Dooley M, Filocamo G, Fiorentino D, Fortin P, Franks A Jr, Gilkeson G, Ginzler E, Gordon C, Grossman J, Isenberg D, Kalunian K, Petri M, [...]
Reprinted from The Lupus Foundation of America LupusQoL-US benchmarks for US patients with systemic lupus erythematosus. Authors: Jolly M, Pickard SA, Mikolaitis RA, Rodby RA, Sequeira W, and Block JA. (2010). Journal of Rheumatology 37: 1828-33. What is the topic? Health-related quality of life (HRQOL) is important to measure when new treatments are studied for lupus. [...]
“If music be the food of love play on..” Julian Lennon and James Scott Cook have taken those immortal words of Shakespeare to heart and in memory of the two Lucys in their life have penned and recorded a song as a loving tribute and as a way to raise much needed funds for lupus [...]
The journey with lupus is littered with lots of hills, valleys, craters and black holes and sometimes it feels as though you are the only one experiencing these symptoms or circumstances. Whilst lupus … [Read More...]
