I understand the power of a shower!

The white of the sides were dazzling and the water that moved between them was at first warm and soothing but then before she knew it, it was cold and uninviting and just as she thought it could not get worst she found herself in an awkward and uncomfortable situation and the stark reality hit [...]

I’ve got lupus!

Okay that may not be a startling revelation as I have now been diagnosed with lupus since 2001 but today, in this place, right now I know that I have lupus and no amount of reframing and thinking positively is going to change this moment right now (the next moment will of course be different) [...]

The power of The Pred!

I’m sorry but I need to start this conversation by singing the praises of prednisolone. Yes you heard me right, I actually have some good things to say about steroids. I know that Prednisolone has a bad rep and I, for one, have been waving that flag after all it gave me the familiar ‘Moon [...]

Swollen Fingers!

No, that is not the name of a new rock band, (wasn’t there a band called Stiff Little Fingers or something similar) although I am sure it would go down a treat. I can see it now, a music venue full of screaming fans all ready for the band to perform their latest offering. ‘No [...]

My least favourite place in the world!

I just wanted to tell you about a recent visit to my least favourite place in the world. The reason I am sharing it with you is not because I want to promote it but because whilst it is my least favourite it can sometimes be useful and this is one occasion when this was [...]

“Hold a true friend with both hands”

That is a wonderful African proverb and although I am not his friend, I’m convinced it is one that mr lupus is taking very seriously. His latest antics are interesting to say the least. I wake up in the morning and he appears to have been holding my hands between his for the whole night. [...]

There are always consequences!

Today I spent most of the time in my usual horizontal position cuddled by my the settee and comfortably located behind the curtains and away from the outside world. Do you know that after three years of watching Diagnosis Murder I actually found one I hadn’t seen before. Amazing I didn’t think that was possible, [...]

Okay who turned the freezer on?

I’ve discovered something new about mr lupus (is there no end to this man?) he loves the cold. How do I know that?Well as I sit here writing this my hands are swollen (but I am a writer so the words must go on) and my feet feel like blocks of ice so I am [...]

It’s a new day!

I have successfully navigated my way through three or maybe four weeks of hell living with mr lupus, three doctors visits and mountain of pills and pain killers to be able to say Happy New Year and now that normal positive thinking has been removed. Now the half full glass is back in its rightful [...]

I made it through!

Image by Getty Images via DaylifeWell there we have it another Christmas over. Was it as painful for you as it was for me? I realised that the Christmas spirit was lacking when the best Christmas present I received was to not spend it in a bed in Lewisham hospital. I am, however, feeling very [...]