It is one thing for the weather to be wet cold and miserable outside but for that same conditions to exist in your head is another story completely.
I have to admit to being lost in the fog over the past couple of weeks and not being able to see the light that I need to… [Continue Reading]
I admit it I am having a ‘few’ lupus challenges at the moment (I can no longer pretend) so when someone sends you an out of the blue text that says:
‘my friend has lupus and they are not sure she is going to make it through the night’
it feels like a huge blow to the… [Continue Reading]
It’s official, I don’t like change. I thought I did, I thought I could cope well with it. I even used to quip that change is easy look how we all managed to make it today without bemoaning the loss of yesterday.
Crazy and big headed, I know but the moment a ‘new’ carer knocked on… [Continue Reading]
I stepped inbetween a fight that was about to kick off between two adults at a 9-year-old party completely forgetting mr lupus, who incidentally reprimanded. Strongly for the next three days. I jumped in as a superhero ready to save the day and the world from themselves.
Lesson’s learnt - Apart from the fact that I am… [Continue Reading]
It’s been a while, a very long while and today although it’s a short one I think you’ll love this because I have decided that it’s time to start laughing with mr lupus again and I have so much to tell you about.
God knows there’s been a whole lot to cry about from ambulances to… [Continue Reading]
“I have an impressive bank of knowledge and experience just can’t remember the combination.” Can anyone help?
Isn’t that one of the not so ‘fun’ challenges that we are faced with on a daily basis living with lupus. Our memories are not quite what they used to be.
I have been told that this is also a… [Continue Reading]
“Everything I can’t find is in a totally secure place.”
Does this ever happen to you. You know you put it in a safe place but the problem is you can’t remember where that safe place is. I had a substantial amount of cash which I put in a safe place assuring myself that I would… [Continue Reading]
Today’s musing is something I came across that I think very clearly explains how we feel sometimes on our journey through the lupus fog.
“I feel like the morning after and I can swear I didn’t go any place.”
If this is how you are feeling today, know that it’s okay to feel that way and if… [Continue Reading]
I bet you probably thought I’d stopped laughing with mr lupus. To an extent you are right. I think I hit a brick wall and no longer wanted to be optimistic about my condition and I believed I had earned the right to feel that way. I was sick and tired of feeling sick and… [Continue Reading]
I’ve done it, I’ve made it through another Christmas moment through the mountain of food I don’t want to eat, the presents I didn’t get and mr lupus’ good friend raynaud’s syndrome knocking at my door. How is it that just when I am starting to feel better, to reclaim the ‘me’ in all of… [Continue Reading]
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The journey with lupus is littered with lots of hills, valleys, craters and black holes and sometimes it feels as though you are the only one experiencing these symptoms or circumstances. Whilst lupus … [Read More...]
