I’ve done it, I’ve made it through another Christmas moment through the mountain of food I don’t want to eat, the presents I didn’t get and mr lupus’ good friend raynaud’s syndrome knocking at my door. How is it that just when I am starting to feel better, to reclaim the ‘me’ in all of [...]

That term always makes me smile, as I am already aware of mr lupus and his antics but I guess it’s not really about me or you for that matter but for the millions of people who have yet to become acquainted with the pains and challenges of this condition. I’ve decided that I need [...]

Can you believe it, today I asked a friend to show me how to do something we both know I know how to do. Essentially I was asking her to give me permission to be me. Bizarre I know but mr lupus has me second guessing myself. Somehow because of the diagnosis and the journey [...]

It’s officially cold in my part of town and I have to admit that I really don’t like it. Okay maybe that is an understatement. I hate it and more significantly my limbs…

I went to the library today and someone asked me if I was there to take ‘the test’ hot on the heals of a hospital appointment the only test I could think of was something that involved needles and discomfort and my first thoughts were that was there no where safe, how did they find [...]