Newly Diagnosed

From the desk of Carole Pyke
Chief Empowerment Officer
Laughing with mr lupus

Dear Friend,
Welcome to my world and the world of so many others like us. As a person newly diagnosed with lupus there are probably a myriad of things going through your mind right now and a whole range of emotions and whilst I will not profess to know what they are it is important for you to know that I have been where you are now and have made it beyond that point and so have countless others so you can too.

You may have only suffered (I use that word deliberately) for a short time or have been going backwards and forwards to doctors for years. Whichever route as brought you here please know that your diagnosis of lupus is not the end but a powerful new beginning. I have chosen to use the word powerful because I think that it is a pivotal moment in your life to be diagnosed with a chronic condition and you can either choose to allow it to control you or find your own ways to be in control of it.

Easy to say, much harder to do, I know as I battle with those choices everyday and whilst I cannot say that I always make the ‘right’ choice I always make the right choice for me at the time. Sometimes I am the victor and at other times the victim, but the important thing is I know the choice I have made. So it is important for you to recognize you have a choice and whilst that choice may not be to get rid of lupus it is about how you live your life from now on.

Me personally I have been living with lupus for the past eight years and have managed to travel, lie on the beach, travel (and some of the time on crutches), socialize with friends and enjoy life and you will find countless stories of men and women who have been living effectively with the condition for many many years.

The truth is that you will have good days and bad days and if you are lucky more of the former and less of the latter. You will experience some or all of the symptoms recognized as lupus characteristics but whilst life as you knew it might have shifted it is possible to still enjoy life in the midst of it all.

Remember lupus is only one aspect of your life not all of it.

Don’t forget to keep coming back to

I look forward to connecting with you.