It’s safe honest!


“Everything I can’t find is in a totally secure place.” Does this ever happen to you. You know you put it in a safe place but the problem is you can’t remember where that safe place is. I had a substantial amount of cash which I put in a safe place assuring myself that I [...]

Is it really the morning after?

Musings from the lupus fog

Today’s musing is something I came across that I think very clearly explains how we feel sometimes on our journey through the lupus fog. “I feel like the morning after and I can swear I didn’t go any place.” If this is how you are feeling today, know that it’s okay to feel that way [...]

No one cares!

Isn’t that what mr lupus often gently whispers in your ears as you sit alone in your lupus stupor and just for a moment you might even begin to believe it yourself. Personally there have been times when I have felt alone and a card carrying member of the great unloved but recently I have [...]

I just stopped!


It’s been a long time since I put pen to paper or fingers to the keyboard and shared my journey with mr lupus. To be perfectly honest with you this is probably because I have felt as though I was no longer on a journey and had in fact arrived at a huge full stop. [...]

Surely I must be up or some kind of award!

Before the end of February I had been to casualty three times, visited my GP twice, met up with my rheumatologist and spent six days in hospital. I don’t know about you but if I had to schedule those times in my diary I wouldn’t have been able to do it. Not that I am [...]

I understand the power of a shower!

The white of the sides were dazzling and the water that moved between them was at first warm and soothing but then before she knew it, it was cold and uninviting and just as she thought it could not get worst she found herself in an awkward and uncomfortable situation and the stark reality hit [...]

I’ve got lupus!

Okay that may not be a startling revelation as I have now been diagnosed with lupus since 2001 but today, in this place, right now I know that I have lupus and no amount of reframing and thinking positively is going to change this moment right now (the next moment will of course be different) [...]